A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

There’s One Method of Healing Trauma That Prince Harry Uses, and Here’s How to Practice It

Prince Harry recently opened up about his journey with post-traumatic stress disorder following the loss of his mother, Princess Diana. In a candid discussion, he revealed his exploration of a groundbreaking therapy that helped him.

The therapy is called eye movement desensitization and reprocessing (EMDR) to address the debilitating effects of his anxiety attacks. This revelation offers a glimpse into the royal’s personal struggles and his proactive approach towards mental health care, shedding light on the significance of seeking innovative treatments of traumas.

In a video, Prince Harry can be seen undergoing EMDR therapy, where he taps his shoulders and moves his eyes rapidly. This therapy is relatively new and is used to treat PTSD. Prince Harry shared that he decided to try EMDR to deal with severe anxiety attacks he was experiencing.

Prince Harry mentioned that he was open to trying EMDR because of the therapy and work he had done over the years.

During a therapy session with UK-based psychotherapist Sanja Oakley, Prince Harry demonstrated how EMDR helped him feel better about returning home. He described feeling scared and helpless before, but the therapy helped him cope with those feelings.

Prince Harry’s openness about his experience with EMDR therapy sheds light on alternative treatments for post-traumatic disorder and mental health struggles. It shows that seeking help and trying different therapies can make a difference in managing mental health conditions.

EMDR is a therapy made in 1987 to help with emotional traumas. It’s a structured therapy where you think about a tough memory while moving your eyes back and forth. This helps lessen the strong feelings tied to the memory.

EMDR works on a theory called Adaptive Information Processing (AIP). It says that trauma sticks around because it hasn’t been dealt with properly. So, when something reminds you of the trauma, those memories can come back strongly.

Unlike other therapies that try to lessen your reaction to trauma, EMDR tries to change how your brain stores those tough memories. Sometimes, instead of eye movements, you might listen to alternating tones. Usually, EMDR happens once or twice a week for about six to 12 sessions. But it can vary depending on the person.

Benefits of EMDR therapy

  • EMDR is a structured therapy and usually needs fewer sessions than ongoing therapies.
  • You don’t have to keep going back to the tough memory for a long time.
  • You don’t have to talk a lot about what happened to you.
  • There’s no homework to do.
  • EMDR doesn’t try to change your thoughts and beliefs.

Disadvantages of EMDR therapy

  • While EMDR is known to help with PTSD, it hasn’t been studied as much for other mood or mental health problems.
  • If you’re avoiding talking about a tough event, EMDR might not be the best choice. Other types of talk therapy might work better.
  • EMDR can sometimes make you feel worse at the start of treatment. The person who created EMDR warns that this could be dangerous for people who have gone through really tough things.

The process of EMDR

EMDR is a structured process with eight phases, each aimed at helping you deal with traumatic memories:

  1. History taking: Discuss your past with the therapist to identify which memories to focus on.
  2. Preparation: Learn about EMDR and how the therapist will use bilateral stimulation.
  3. Assessment: Identify your negative and positive beliefs related to the trauma.
  4. Desensitization: Use bilateral stimulation while recalling the memory.
  5. Installation: Focus on positive beliefs while processing the memory.
  6. Body scan: Talk about how you feel emotionally and physically.
  7. Closure: Prepare for what may happen between sessions.
  8. Reevaluation: Assess your progress and decide if more sessions are needed.

As you go through EMDR, you may start feeling less overwhelmed by the trauma. It’s normal for other painful memories to surface, indicating that suppressed memories are being processed.

When grappling with deep emotional traumas, it’s crucial to seek out specialists who can provide the appropriate form of treatment tailored to your needs. Whether it’s EMDR therapy or other therapeutic approaches, finding the right professional can make a significant difference in your healing journey.

Preview photo credit Good Morning America / YouTube

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