Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
\
Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
During the live performance of Journey’s “Don’t Stop Believin’” in 1981, Steve Perry’s vocals were truly phenomenal
In 1981, Steve Perry of Journey delivered a live performance of “Don’t Stop Believin’” that cemented his reputation as one of the greatest singers in history. Earlier that year, the song had become a worldwide sensation. During a 1981 concert in Houston, Texas, the band showcased their exceptional talent on this now iconic track.
Perry’s vocal delivery on this song is strikingly smooth and almost ethereal, capturing the magnetic presence of a rock star that electrifies the audience. Observers often comment that Perry’s live performance surpasses his studio recordings in its raw intensity and finesse. For an even better experience, you can watch an HD remaster of Journey’s 1981 Houston performance of “Don’t Stop Believin’” on their official YouTube channel.
With 274 million views, this live performance is one of Journey’s most popular videos, ranking third overall on their YouTube channel and number one among their live recordings. The footage comes from their Escape Tour, which supported their seventh studio album, Escape.
Journey played two shows in Houston on November 5 and 6, 1981, but it remains unclear which night “Don’t Stop Believin’” was recorded. The band was clearly in top form during the Escape tour, as evidenced by the popularity of “Who’s Crying Now”, which was also recorded in Houston and was the second most viewed live performance on their YouTube channel.
Fans praised the performance with comments like “No auto-tune, no backing tracks, just exceptional musicianship” and “Steve Perry sings like he’s effortlessly passing a test without studying”. The reaction underscores the awe and admiration for Journey’s live rendition of “Don’t Stop Believin’” in Houston.
The song reached top ten status both in the US and internationally, eventually becoming Journey’s most consistent hit, with 18 platinum awards in the US.
Leave a Reply