In a heartwarming Instagram post, Tallulah Willis, youngest daughter of Hollywood stars Bruce Willis and Demi Moore, shared a touching childhood memory of her father carrying her on the red carpet. However, the post carried a deeper meaning, hinting at Tallulah’s recent autism diagnosis. Let’s delve into her story and learn more about her condition!
Tallulah’s Instagram video clip showed her as a young child playfully interacting with her father’s head while he spoke to the media at a film premiere. She captioned the clip with the phrase “tell me your autistic without telling me your autistic [sic],” inviting her followers to engage in a conversation about autism.
The response from Tallulah’s 408,000 followers was overwhelmingly supportive and loving. Many shared their own knowledge and experiences with autism, discussing Tallulah’s symptoms and the loving reaction of her father. One user even praised Bruce for his exceptional care, saying, “Your dad is one-of-a-kind honey, and so are you.”
When questioned by a psychologist specializing in neurodivergent conditions, Tallulah revealed that this was the first time she had publicly shared her diagnosis. She discovered her autism diagnosis during the summer, and it has had a significant impact on her life.
Autism spectrum disorder (ASD) is a developmental disability that affects social communication, interaction, and behavior. According to the Centers for Disease Control and Prevention (CDC), individuals with ASD often display restricted or repetitive behaviors and interests. Tallulah’s sister, Scout LaRue Willis, provided further insight by explaining that Tallulah’s actions in the video, such as folding her father’s ear, are a form of stimming. Stimming helps individuals regulate sensory input.
Tallulah’s revelation comes at a challenging time for the Willis family, as they continue to support their father, Bruce Willis, in his battle with aphasia and frontotemporal dementia (FTD). Bruce was diagnosed with FTD, a degenerative condition primarily affecting communication and behavior, in 2023. One of the early symptoms he experienced was aphasia, which affects language skills.
For now, Tallulah has chosen not to disclose further details about her diagnosis. The outpouring of love and support for her speaks volumes about the resilience of the Willis family. Let’s send our best wishes to Tallulah and her family as they navigate this new chapter in their lives.
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If you spot a purple butterfly sticker near a newborn, it is important to understand its meaning
When Millie Smith and Lewis Cann found out they were expecting a baby, they were overjoyed. As there was a history of twins in Millie’s family, she had a strong feeling that she was going to give birth to two little ones, and her instincts were right. The ultrasound confirmed that she was indeed expecting twins, but the doctors told them that one of the babies had a very small chance of survival.
ragically, one of their daughters was born at 30 weeks with anencephaly, a serious condition that affects the development of the brain and spinal cord. They learned that their precious baby had only moments or hours to live.
Knowing this, Millie and Lewis wanted to give her a name before they said goodbye. They chose the name Skye. Millie explained: “We felt she needed a name before she arrived. Knowing she wouldn’t be with us for long, I wanted her to have a name in those fleeting moments”.
The name “Skye” symbolized a connection to a place they could always remember when they looked up to the sky. “We held Skye close as she died. It was the most heartbreaking moment of our lives, but I’m proud that she fought to spend that time with us.” Skye only lived for three hours, a brief time filled with love while her parents cherished her beauty and presence.
After her death, Millie and Lewis were supported by a “bereavement midwife” and given access to a “Daisy Room”, a special room where parents could spend time with their baby before and after death. However, after Skye was gone, her memory seemed to fade; no one spoke of her, leaving Millie feeling like her daughter had never existed, which made her angry.
“Most of the nurses knew what had happened, but as the weeks went by, people stopped mentioning Skye. Other families around me had no idea about our loss”, Millie recalls.
While her other daughter, Callie, was still in the NICU, another mother who knew nothing about Millie’s situation remarked how lucky she was not to have twins. “None of the other parents knew about Skye, and that innocent comment almost broke me. I left the room in tears but didn’t have the heart to explain”, Millie said. “A simple sticker could have prevented this.”
This experience inspired Millie to design a sticker for incubators to mark the loss of one or more babies in a multiple birth. She chose butterflies to symbolise the ‘flown away’ babies and used the colour purple, which is suitable for any gender.
From this idea grew the Skye High Foundation, which promotes the Purple Butterflies initiative and helps raise awareness in hospitals around the world. The foundation also offers a range of purple butterfly merchandise.
“Although I can’t prevent these situations from occurring, I believe the more support we can provide through initiatives like the stickers, the better it will be for others who suffer this loss. It’s an incredibly tough journey”, said Millie. Today, her surviving daughter Callie is seven years old.
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