If you see a purple butterfly sticker near a newborn, you need to know what it means

Only weeks after Millie Smith and Lewis Cann learned they were having twin baby girls, they learned that only one would survive.

On April 30, after 30 weeks of a high-risk pregnancy, Smith delivered identical twins, Callie and Skye, the latter who lived only three hours.

Later in neonatal intensive care unit (NICU), Callie slept without her sister in the incubator, with her loving and grieving parents watching over her. In the unit with other babies, an overwhelmed mom of healthy newborn twins innocently told Smith that she was “so lucky” to not have two babies.

Crushed by the words, the new mom couldn’t find the words to explain her loss. Then, she realized that Skye’s legacy was to help other families who lose a child, and it came in the form of a purple butterfly.

In November 2015 Millie Smith and partner Lewis Cann found out they were having their first Child. Smith, who has twins in the family, said she had a “gut feeling” about having a duo and 10 weeks later, doctors confirmed she was expecting identical twin girls.

Less than two weeks after the excitement of knowing they would double the children in their home, the British couple were devastated to learn that one of their babies had a fatal condition and wouldn’t survive after birth.

“During the scan, the doctor didn’t say anything. I was very excited and loved seeing the little babies, but she was silent. Both Lewis and I immediately knew there must be a problem,” Smith said.

Doctors shared the news that one of the babies had anencephaly, which according to the Centers for Disease Control and Prevention (CDC) affects about one in 4,600 babies across the U.S. It’s a serious birth defect where a baby is born without parts of the brain and skull, and “almost all babies born with anencephaly will die shortly after birth.”

Knowing that one baby would die soon after birth, and that there were risks involved for their other baby, the couple decided to move forward with the extremely high-risk pregnancy.

Over the next several months, Smith and Cann named their twins Skye and Callie. “We knew that Skye needed to have a name before she was born,” Smith said. “Knowing she would only survive for seconds or minutes, I wanted her to be named during that time.”

The meaning behind “Skye,” she explained “was somewhere we knew she would always be, that we could look up at the sky and remember our baby.”

When Smith went into labor after only 30 weeks on April 30, she needed an emergency C-section. To help navigate the loss, the couple had a “bereavement midwife” during the birth, and they were put I a special room the called the “Daisy Room,” where families can spend time with a baby before and after she/he passes.

“When the girls were born, they both cried. This was a huge moment, as we were told that Skye would not make a noise or move,” said Smith, who was thankful to have three hours with Skye before she died. “We were cuddling Skye when she passed away. This was the worst moment in our lives. I have never ever felt heartbreak like that before. But I am proud that she fought for so long to spend time with us.”

Born premature, Callie had to stay in NICU while she gained some strength and also in the unit were three other sets of twin.

“Most of the nurses were aware of what had happened, but as time passed, people stopped talking about Skye. After about four weeks, everyone acted as though nothing had happened, meaning the families around me had no idea about our situation,” Smith recalled.

One morning, a stressed mother whose twins were also in NICU, harmlessly said to Smith that she was “so lucky” to not have twins.

“None of the other parents knew what had happened or anything about Skye. The comment was completely innocent and more out of humor…They weren’t to know that I did at one point have two.” Smith continued, “But the comment nearly broke me. I ran out [of] the room in tears and they had no idea why. I didn’t have the heart to tell them what had happened. A simple sticker would have avoided that entire situation.”

It was in that moment Smith realized she had to create something that would speak for parents who had just lost a baby, ensuring the misunderstanding never happens again.

She designed a poster for the NICU explaining both hospital personnel and visitors that any incubator with a purple butterfly on it means that one or more babies, in a set of multiples were lost.

“I chose butterflies, as I felt it was fitting to remember the babies that flew away, the color purple because it is suitable for both boys or girls,” said Smith.

The purple butterfly concept–now under the Skye High Foundation–has spread to hospitals in several countries around the world.

Callie is now a lively, happy seven-year-old, and twin’s memory lives in purple butterfly cards along with other initiatives to help families with babies like Skye all over the world. The purple butterflies now come in numerous forms, like ornaments, cards, blankets, stuffed animals and more.

“Ultimately I will never be able to stop this from happening but the more support groups we can set up and put things in place like the stickers the better it will be. It’s the hardest thing anyone has to deal with,” Smith said.

I Came Home to Find My Kids Outside with Packed Bags, It Was the Hardest Day of My Life

out here with your stuff?”

Jake glanced at his little sister, Emily, who clutched her stuffed rabbit tightly. “You texted us,” he continued, his voice soft. “You said to pack and wait for Dad. He was coming to get us.”

I froze, confusion giving way to panic. “I never sent you a text. Let me see your phone.”

Jake handed me his phone, and as I read the message, my blood ran cold.

“This is your mom. Pack your stuff, take the cash I left, and wait for Dad. He’ll be there soon.”

The words blurred in front of me. I hadn’t sent that message. I’d never tell them to leave. My heart pounded, and a wave of nausea swept over me.

“Mom?” Emily’s voice broke through my panic. Her wide blue eyes searched mine. “Are we going with Dad?”

“No, sweetheart,” I said firmly. “You’re not going anywhere.”

Just as I stood up, trying to figure out what to do, I heard the rumble of a car pulling into the driveway. My blood froze. I turned slowly to see who was behind the wheel.

It was him—Lewis, my ex-husband.

“Kids,” I said, keeping my voice low and steady. “Go inside. Now.”

Jake and Emily hesitated for a moment before grabbing their bags and retreating into the house. I turned to face Lewis, who had already stepped out of his car, wearing that same smug expression I’d grown to despise.

“Well, well,” he sneered. “Leaving the kids alone like this? Great parenting.”

“Are you serious?” I snapped, stepping toward him, my body trembling with anger. “You told them to pack up and wait for you. What are you trying to pull, Lewis?”

He leaned against his car, arms crossed, feigning innocence. “Just looking out for their safety. Maybe if you can’t handle things, they’d be better off with me.”

My anger boiled over. “You lost custody for a reason. Don’t forget that.”

His smirk grew wider. “Maybe that was a mistake.”

Before I could say another word, the front door creaked open. Jake and Emily stood in the doorway, tears streaking their faces, fear written all over them.

“Stop fighting!” Jake’s voice cracked as he pleaded. “Please, Mom. Please, Dad. Stop.”

Seeing their distress, Lewis shrugged, clearly unfazed. Without another word, he got back into his car and sped off, leaving me to pick up the pieces.

As I stood there, watching him disappear down the street, something shifted inside me. I had held it together for the kids, but deep down, I knew this wasn’t over. Lewis wasn’t going to stop. He would keep manipulating them, keep trying to twist the situation in his favor. I had to outsmart him.

I pulled my children into my arms, their tears soaking into my shirt. I made a silent vow to protect them, no matter what it took. I wouldn’t let Lewis turn them against me or make himself the hero in this mess.

I had heard rumors about his new girlfriend, Lisa—a woman who, like everyone else, believed Lewis’s lies about me. He had painted me as the “crazy ex-wife,” the unreasonable one who wouldn’t let him be part of his kids’ lives. But now, I had proof. The fake texts, the custody rulings, years of manipulation—all of it was about to come to light.

Determined, I gathered every piece of evidence I had—messages, legal documents, anything that could expose Lewis for the liar he was. I didn’t want revenge, but I wanted the truth to be known.

I reached out to Lisa, asking if we could meet in private. Surprisingly, she agreed. When we sat down together, I could see the hesitation in her eyes. She was guarded, ready to defend him. But I didn’t approach her with anger. Instead, I calmly laid out the facts, handing her the phone with the fake messages and the legal documents detailing the custody arrangement.

“Look,” I said, my voice steady. “I know what he’s told you about me, but this is the truth.”

Lisa’s eyes widened as she read through the evidence, her confidence wavering. I could see the gears turning in her head, the doubt creeping in.

“I’m not here to ruin your relationship,” I continued. “But I thought you deserved to know who he really is. He’s been manipulating you, just like he manipulated me.”

Lisa glanced up, conflicted. She tried to defend him at first. “He said you were difficult, that you wouldn’t let him see the kids…”

“I’m sure he did,” I said gently. “But the facts speak for themselves.”

She didn’t say much after that, but I could tell she was starting to question everything. It was only a matter of time before she’d realize the truth.

A few weeks later, I heard through a mutual friend that Lisa and Lewis’s relationship was crumbling. She had started confronting him about the lies, and their once-solid bond was unraveling. Small cracks turned into gaping holes, and the web of deception he had spun around her was falling apart.

I didn’t have to lift another finger. The truth had done the work for me.

I didn’t get revenge in the traditional sense, but I got something better—justice. Lewis’s manipulative games had finally caught up with him, and his house of cards was collapsing. It was all I had ever wanted.

And that was enough.

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