Sometimes, children find it hard to express their feelings. This means parents need to be more aware of what their child needs. These parents did just that, but sadly, it was beyond their control.
At the dentist, they found that he had some swelling in his teeth, likely due to a tooth infection. But instead of getting better, the swelling continued to grow.
When nothing seemed to help and his swelling got worse, his parents quickly took their upset child to a hospital. There, they received heartbreaking news: he had tumors on his brain and spine.
What was believed to be a tooth infection turned out to be a rare type of cancer called Rhabdomyosarcoma. This cancer is so rare that it affects only about 55 children in the UK each year.
The first signs of this diagnosis are swelling or lumps that can appear on the body.
“Our world fell apart,” said Ethan’s father, Mark, in an interview.
Doctors discovered that Ethan’s cancer had spread to his lungs and bone marrow. They decided to start a strong treatment plan that included chemotherapy and radiotherapy.
But after nine months of treatment, Ethan passed away at just 9 years old.
After his death, his parents were very upset and called the treatment methods used for their son “embarrassing” and outdated. The grieving parents started a fundraiser in Ethan’s name to help support research.
Mark, Ethan’s father, described the treatment methods as “embarrassing” and said they are very outdated. They set a goal of $62,000 for their fundraiser, and about half of that has already been raised.
“We don’t want other families to go through what we’ve experienced; it’s terrible,” said Ethan’s family.
After his death, the issue of funding research on childhood cancer has been discussed in parliament, which is an important step toward ensuring more money is directed to this area.
If you found this story interesting, check out the one below about a three-year-old who passed away after dental procedures.
“People Only Know Me as a Freak,” The Wolf Man Struggles to Find a Job Outside the Circus
Jesús Aceves has hypertrichosis, which makes his hair grow abundantly over his face and back. Because of his condition, he’s also known as The Wolf Man. But he’s tired of this alias and wants to live a normal life.
Meet Jesús Aceves, a 55-year-old man born with a condition called hypertrichosis, which means he has abnormal hair growth over his body, especially his face. Although married with kids, Jesús isn’t fully happy with his living conditions. He says he and his family suffer discrimination. In an interview, one of his kids mentioned, “People call me names, and they even tell their kids not to be my friends.”
He worked in the circus all his life, traveling through several cities. But now, he’s tired of being seen as a freak. As a consequence of years on the road, he’s been known as The Wolf Man.
Back home and not in the circus anymore, he’s facing another challenge: finding a “normal” job. He needs to support his family since his wife works in temporary jobs.
After several failed job interviews, he agreed to try something he had always avoided: shave his face. He relied on his family barber to transform him, even creating eyebrows and lashes.
The experience was difficult since the face is an extremely sensitive body area, but both he and his wife believed that simply by shaving, he would be able to find a job.
Jesús did several interviews, and it’s confident that now he’ll find somewhere to work besides the circus. If this happens, he must shave his face every 2 days.
Although rare, some conditions aren’t impossible to have. Luckily, people find a way to overcome the difficulties a rare condition brings and strive in life. Hannah Tyre, for example, was born with osteogenesis imperfecta, meaning that her bones break very easily. But her love for makeup made her an internet influencer, reaching millions of followers. We hope that, by reaching the mainstream media, people with genetic diseases won’t suffer more discrimination.
Preview photo credit A True Story / Youtube
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