Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

Protecting Our Children: A Parent’s Priority

Our first concern as parents is for our kids’ safety and wellbeing. We automatically take every precaution to keep them safe from harm from the minute they are born. It is just inconceivable to consider our children getting sick or injured. Without even thinking twice, we go above and beyond to keep them safe.

But the truth is that things can go awry sometimes even with our greatest intentions. Every parent knows that accidents can occur and that it is frightening to consider a scenario that is beyond of their control. Jackie Fedro knows all too well about this. Her daughter’s terrifying tragedy happened in 2016, but it serves as a potent lesson for all parents to be watchful and observant at all times.

A BuzzFeed article claims that Jackie made the decision for her 13-year-old daughter Gabbie to receive her own smartphone in 2016. It was an LG d500 that was a Christmas present. Jackie clarified that Gabbie’s hectic practice schedule necessitated having a phone, which was one of the reasons she was given one. They had no idea that the course of their lives would become quite frightening.

One day, Gabbie’s mother heard her cry as she was using her phone in her room. Jackie realized her kid was in terrible pain as she hurried to her side in a panic. Gabbie was screaming hysterically and clutching her neck. For Jackie, it was a heartbreaking sight as a mother. She was helpless and unsure of how to make her daughter’s suffering better. Gabbie needed a few minutes to formulate an explanation for what had transpired.

Gabbie admitted to her mother that she had been on her phone during the charging process. She was shocked by an electric shock. When the current touched her metal necklace, it burned her neck after passing through her phone and up the charging cord. Due to the extreme heat, Gabbie had to endure excruciating second-degree burns, leaving a scar across her neck.

Shocked by this unexpected event, Jackie was driven to tell her daughter’s tale and educate other parents about the unspoken risks associated with cell phones. It’s not something that’s often known or even discussed. Jackie stressed, “Parents need to be warned about the harm that phones can cause, especially with so many kids using them these days.”

Isn’t it horrible to consider that something as basic as using a phone might result in such a horrific experience? Stories like these serve as a helpful reminder to parents of the value of continuing education and vigilance. Let’s make sure we take every precaution to keep our kids safe.

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