In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
I Refuse to Let My Irresponsible Stepdaughter Exploit Her Dad
In blended families, it’s common for parents to have differing views on how to handle their children. Colleen’s husband continues to provide financial support to his 19-year-old daughter, who is pregnant and already a mother of two. Meanwhile, Colleen feels that her stepdaughter should not be coddled and needs to learn to take responsibility for her actions. This clash in parenting styles led to a situation that went terribly wrong, and Colleen has shared her story with us.
Here is Colleen’s letter:
Hi Colleen! Thank you for sharing your story with us. We’ve prepared 4 pieces of advice that we believe can help you.
Seek mediation or couples counseling.
Given the emotional and financial conflicts, involving a neutral third party could help. A mediator or counselor can facilitate a discussion between you and your husband to address the underlying issues.
This professional might help clarify each other’s perspectives, restore communication, and find a resolution that acknowledges both your concerns and your husband’s responsibilities.
Reevaluate financial decisions and transparency.
Consider discussing the financial decisions and future planning openly with your husband. Since you drained the shared savings account without his consent, it’s crucial to establish a clear, mutually agreed-upon approach to handling finances moving forward.
This might involve setting up separate accounts for personal expenditures and jointly managed accounts for shared expenses, ensuring that both parties are informed and agree on financial decisions.
Engage in a direct conversation with your stepdaughter.
It may be beneficial to address the situation directly with your stepdaughter. An honest conversation about her expectations and how her actions have impacted your relationship with her father could help clear misunderstandings.
Express your intentions and concerns, and listen to her perspective to potentially reach a better understanding and find common ground.
Consider moving out temporarily for reflection.
If the tension remains high and communication isn’t improving, temporarily moving out might provide space for both you and your husband to reflect on the situation. This physical distance could give you time to think about your relationship and future steps without the constant emotional strain.
Use this time to assess what you both need and whether there’s a path forward that respects both your needs and your husband’s.
Another stepmom dealing with tension is Claudia. When her 32-year-old stepdaughter lost her job and decided to move back in with her father, Claudia insisted that she pay rent. This decision led to an unexpected turn of events, and she reached out to us for advice. Read her story here.
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