Céline Dion’s documentary, I Am: Celine Dion, has been finally released, offering a rare and candid look into her daily struggles. In one particularly vulnerable moment, Dion shares her experience of suffering a terrifying seizure that lasted several minutes.
© I Am: Celine Dion / Sony Music and co-producers
The documentary captures a tense moment as Céline Dion undergoes a medical evaluation. The Grammy-winning artist has been struggling with spasms linked to stiff person syndrome, a rare and progressive neurological disorder.
© I Am: Celine Dion / Sony Music and co-producers
Lying down on a massage table, 56-year-old Dion experiences spasms. Her doctor, Lobo, cautions that these spasms could “lead to a crisis.”
Soon after, the icon begins to experience a severe seizure. Her doctor swiftly calls for another medical team member to give her a medication used to treat nervous system disorders.
© I Am: Celine Dion / Sony Music and co-producers
At that moment, Dion can be heard groaning in pain as she shakes uncontrollably while lying face down. In a startling moment, Dion appears wide-eyed and unable to move independently.
Despite her condition, she remains conscious and manages to signal her awareness by weakly squeezing one of the medical expert’s hands.
© I Am: Celine Dion / Sony Music and co-producers
Following the administration of two doses of a nasal spray, Dion starts to recover from the seizure. The doctor mentions that if she hadn’t responded, they would have needed to rush her to the hospital.
As the My Heart Will Go On singer seems to regain her composure, she confesses to everyone in the room that experiences like these leave her feeling “so embarrassed.”
© I Am: Celine Dion / Sony Music and co-producers
Describing her horrible experience, the singer says, “I don’t know how to express it, like, it’s just … you know, like, to not have control of yourself?” Her doctor, Lobo, explains that the likely trigger for the seizure was Dion’s recent session in the studio where she had been singing, which overstimulated her brain.
Dion replied, “Well, what am I gonna do? If I can’t get stimulated by what I love, and then I’m gonna go onstage and, like, you’re gonna put the pulse oximeter on me, and you’re gonna turn me on my back?”
© I Am: Celine Dion / Sony Music and co-producers
Céline revealed her stiff person syndrome diagnosis back in December 2022. The star had to cancel tour dates in Europe, postpone her Las Vegas residency scheduled for October 2021, and later cancel her North American tour.
We admire Céline Dion’s determination and strength in the face of the formidable challenges she has encountered. Her life has been a journey fraught with difficulties from a young age, and here are seven major struggles that have shaped her into the inspirational icon she is today.
Preview photo credit I Am: Celine Dion / Sony Music and co-producers
SCHOOL EMBARRASSES TEEN OVER OUTFIT—HER DAD’S HILARIOUS REVENGE IS UNFORGETTABLE
In August 2017, Tony Alarcon’s phone rang unexpectedly.
Like many parents, he thought it might be a telemarketer. But this time, he answered the call.
Hearing from the school can be nerve-wracking for any parent. Tony immediately started worrying—was his daughter, Demetra, okay? Had something happened?
What he found out left him surprised.
It was a hot summer day in Northern California, with temperatures reaching 90 degrees. Tony had dropped off his 13-year-old daughter, Demetra, at school that morning. She wore a blue romper to stay cool in the heat, and neither of them thought the outfit would cause any issues.
Demetra, a student at Raymond J. Fisher Middle School in Los Gatos, California, had simply dressed for the weather.
Not everyone agreed with Demetra’s outfit. A teacher at her school said her romper was “too distracting” for the boys.
When the teacher told Demetra that her outfit was too short, her dad, Tony, rushed back to the school with a change of clothes—jean shorts and a tank top. But the school said those clothes were also inappropriate.
Tony was shocked. He asked Demetra to bend over and touch her toes in front of the school administrator. “Nothing is hanging out. There’s nothing inappropriate. I don’t understand this dress code rule,” he told TODAY.
Still, the school said her clothes were “distracting.” Since it was 90 degrees outside, Tony had no choice but to go to his car and grab a pair of leggings for Demetra to wear.
Demetra felt embarrassed.
Tony expressed his frustration, saying, “She’s just a kid. She’s only 13. She’s not trying to be a sex symbol. She just wants to be comfortable and attend class, but we’re not giving her that chance.”
This wasn’t the first time Demetra had been in trouble for her clothes. Just a week before, she was called out for a visible bra strap. “When I got dress coded last week, they said my bra strap was showing,” Demetra told the *San Jose Mercury News*. “Like, I’m wearing a bra—what’s the big deal?”
Tony, a successful investment advisor and father of two, didn’t let it go. Angry at what he saw as an unfair rule that mostly targeted girls, he took his complaint to social media. Parents from all over the country showed their support, agreeing that the school’s dress code was outdated and unfair to girls.
“Demetra’s not the only one. If you sit in the school parking lot, you’ll see that,” Tony said. “Lots of girls just want to be comfortable, but they feel forced to wear leggings even when it’s 100 degrees outside.”
Tony believed that parents, not schools, should decide if their children’s clothes are appropriate. He was also worried about how being told their clothing is a “distraction” to boys could affect young girls emotionally in the long run.
The story quickly got attention from the media, with major news outlets reporting on Tony’s efforts to change the dress code. While the school didn’t speak on camera, they did release a statement:
“The Los Gatos Union School District believes that appropriate dress and grooming contribute to a productive learning environment,” the district said. “Students are expected to wear clothes that reflect the core values of our learning community.”
Tony’s efforts made an impact. His push for change led the Los Gatos Union School District to reevaluate its dress code to make it fairer and less strict for all students.
Lisa Fraser, the school’s principal, explained that the dress code rules, called “Fashion Faux Pas,” apply to both girls and boys. Some of the rules include no hats or hoods indoors, no visible underwear, no inappropriate logos or words, and shorts must have at least 4-inch inseams.
“There has always been a dress code,” Fraser told a newspaper. “These are basic rules for appropriate behavior. I can set guidelines for the school, but I want them to reflect the community’s values.”
In the end, Tony Alarcon’s persistence started an important discussion about how school dress codes affect young girls — showing that one parent’s voice can truly make a difference.
What do you think about the school’s dress code? Have you or your children faced a similar situation? Share your thoughts and experiences in the comments!
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