Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

What happened to Ann Curry after a 25-year career at NBC News?

What happened to Ann Curry?

The veteran journalist, who celebrates her 67th birthday on November 19, has remained relatively quiet since she was forced out of her job at Today in 2012 and later, NBC News in 2015.

Despite her name no longer appearing in the headlines, Curry continues to work in the field of journalism.

Curry, the eldest of five, was born in Guam to Hiroe Nagase and Robert Paul “Bob” Curry. As a child she spent several years living in Japan before her family moved to Oregon where she attended high school and would later attend and graduate from college.

She began her broadcasting career in 1978 as an intern at KTVL, then an NBC affiliate in Oregon. After succeeding as an intern she was promoted to become the station’s first female news reporter.

Two years into her career she moved to KGW in Portland where she worked as both an anchor and reporter. She later moved to Los Angeles where she worked as a reporter for a CBS affiliate for six years.

During that time she won two Emmy Awards for her work.

https://www.instagram.com/p/2oXdqZs1gY/?utm_source=ig_embed&ig_rid=6a608194-d895-4f9f-bb63-1c9ca7572102

Career at NBC News

In 1990, Curry began her career at NBC News.

She began as an NBC News Chicago correspondent before securing a job as an anchor on the now defunct show, NBC News at Sunrise. During her five-year stint as an anchor on the morning show, she also filled in for Today‘s Matt Lauer.

In 1997 she was promoted to news anchor on Today and held the position from 1997 to 2011.

In addition to reading the news on Today, Curry was named co-anchor of Dateline NBC in 2005, and she was the main substitute on NBC Nightly News from 2005 to 2011.

Ann Curry, Al Roker, Katie Couric and Matt Lauer. (Photo by Rick Maiman/Sygma via Getty Images)

Regardless of her accolades or coverage of hard news stories, in June 2012, Curry found herself out of a job.

Her departure was emotional and public, and it was never very clear the reason behind her leaving Today.

While she no longer sat next to Matt Lauer, she remained with NBC News, but only until January 2015.

Life after NBC News

Following her 25-year career with NBC News, Curry slowed down, but made no less of an impact with her reporting.

She founded a multi-platform media company, reported and produced the PBS series We’ll Meet Again, gave a TED Talk about restoring trust in journalism, and hosted TNT’s Chasing the Cure.

NEW YORK, NEW YORK – MARCH 30: Ann Curry attends the 2023 A Great Night In Harlem Gala at The Apollo Theater on March 30, 2023 in New York City. (Photo by Arturo Holmes/Getty Images)

In 2022, Curry received the Murrow Lifetime Achievement Award from Washington State University’s Edward R. Murrow College of Communication. The university recognized her work “on human suffering in war zones and natural disasters through her work as an American journalist, photojournalist, and reporter.”

Most recently, Curry sat down with Min Jin Lee, author of “Pachinko,” for PBS Arts Talk.

And while Curry has kept posting to a bare minimum on social media, after a year and a half absence, she returned to share a wintry photo.

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“Good morning world. Keep safe and cozy. ‘The woods are lovely, dark and deep…’” she wrote before disappearing again.

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