The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition

Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey

Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments

At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress

Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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This house, located at 2,800 meters above sea level, is considered the loneliest in the world and fascinates with its interior

Nestled in the Italian Dolomites, Buffa di Perrero sits at 2,800 meters above sea level and is often referred to as “the loneliest house in the world”.
Although this isolated structure has been abandoned for a century, it still captures the imagination.
The origins of the Buffa di Perrero are mysterious. It is widely believed that during World War I, workers were sent to this remote location to build some sort of shelter.

Legend has it that Italian soldiers built this hidden refuge to escape harsh weather conditions and seek shelter during battles with the Austro-Hungarian Empire.
Constructed of brick walls and a sloping roof, the building features four windows and camping chairs, stimulating curiosity about how the materials were transported to such a remote location. Steel ladders and ropes were used to negotiate the treacherous terrain and access the structure.
During World War I, similar “bivouacs” were constructed along the Italian front as temporary rest areas and strategic observation points amid the intense mountain warfare.

Since then, the weather damage has taken its toll. The hut reportedly became “unusable” for climbers after the roof collapsed. Nevertheless, adventurers can take a look into this mysterious house via steel ladders, rungs and ropes.
The interior, with its wooden decor, evokes the attempts of both soldiers and modern explorers to relax in this remote refuge.
Inspired by the Buffa di Perrero, the Auronzo Club Alpino Italiano (CAI) built a modern refuge near the Forcella Marmarole pass.

For those seeking an adventurous trip, a challenging five-hour hike leads to this modern hideaway reminiscent of the Buffa di Perrero. Like many iconic landmarks, the Buffa di Perrero has given rise to numerous imitations.
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