Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

My Husband Secretly Sent a Photo of My Lasagna to His Friends, Calling it ‘Disgusting’ — So I Taught Him a Lesson

When my husband mocked my homemade lasagna behind my back, I teamed up with my mother-in-law to serve him a taste of his own medicine. What followed was a dinner he wouldn’t forget, teaching him a lesson in appreciation and respect.

My husband, Dave, and I have been married for about three years. I pride myself on my cooking skills. I’m no gourmet chef, but I’ve never had any complaints — until recently.

Happy couple | Source: Midjourney

Happy couple | Source: Midjourney

Last Friday, I decided to make one of my favorite recipes: homemade lasagna. I spent hours preparing it, making sure everything was perfect. When it was finally ready, I served it up with a smile. I expected at least a ‘thank you’ from Dave.

Instead, he took one bite, made a face, and pulled out his phone. I thought he just took the photo because he photographs everything around. But in a second, I heard the sound of a text message arriving. Curious, I peeked over his shoulder and my heart sank.

Unpleased Dave with lasagna | Source: Midjourney

Unpleased Dave with lasagna | Source: Midjourney

The message read, ‘Look at what she made tonight. It’s barely edible. I miss Mom’s cooking.’

My blood boiled. “Dave, what the heck is this?” I asked, my voice shaking.

He looked up, startled. “What? Oh, nothing,” he stammered, trying to hide his phone.

Close-up portrait of his he nice attractive funny confused brunet bearded guy wearing pink tshirt waiting news biting lip isolated over violet purple lilac pastel color background | Source: Getty Images

Close-up portrait of his he nice attractive funny confused brunet bearded guy wearing pink tshirt waiting news biting lip isolated over violet purple lilac pastel color background | Source: Getty Images

“Nothing? You just texted someone that my lasagna is barely edible and you miss your mom’s cooking!” I snapped.

Dave sighed. “Look, I didn’t mean it like that. I was just… I don’t know, venting. It’s not a big deal.”

“Not a big deal?” I couldn’t believe my ears. “Do you have any idea how much effort I put into this? If you didn’t like it, you could have just told me.”

Man texting on his phone | Source: Unsplash

Man texting on his phone | Source: Unsplash

“I didn’t want to hurt your feelings,” he said defensively.

“By telling me to my face, or by texting someone behind my back?” I shot back. “Because I think this is way worse.”

Dave rubbed his temples. “Okay, okay, I’m sorry. It was a dumb thing to do.”

Sad elderly woman | Source: Pexels

Sad elderly woman | Source: Pexels

I wasn’t satisfied with his half-hearted apology, but I decided to drop it for the night. The next day, I had a different plan.

I told Dave that I had a work event and would be home late. In reality, I went to his mom’s house. She was a wonderful woman and I wanted to ask her for advice. When I arrived, she welcomed me in with open arms.

“Hey, sweetie! What brings you here?” she asked, giving me a hug.

Mother-in-law | Source: Midjourney

Mother-in-law | Source: Midjourney

I sighed. “It’s about Dave. He did something really hurtful yesterday.”

She frowned. “What happened?”

I told her about the lasagna incident and showed her the message Dave had sent. She was shocked and immediately agreed to help me.

Mother-in-law comforts the woman | Source: Midjourney

Mother-in-law comforts the woman | Source: Midjourney

“Oh God! I never brought him up to be such a brat. Hon, he’ll learn a lesson. I have a plan.”

My mother-in-law offered to cook up a storm in her kitchen. She made all of Dave’s favorite dishes, but with a twist. She over-seasoned, undercooked, and generally made sure everything tasted awful.

Then she plated it all up beautifully, knowing Dave wouldn’t be able to resist taking a picture. Then she called him and invited him for dinner.

A slice of lasagna garnished with basil | Source: Pexels

A slice of lasagna garnished with basil | Source: Pexels

The house smelled delicious, even if I knew better. As she worked, she explained the plan in detail, her eyes twinkling with mischief.

“I’ll make the mashed potatoes too salty, the green beans half-cooked, and the chicken dry as a bone. He’ll be so excited when he sees the spread, and then… well, let’s just see what happens.”

I couldn’t help but laugh. “You really think this will work?”

Elderly woman with a cup | Source: Pexels

Elderly woman with a cup | Source: Pexels

She winked. “Oh, honey, I know it will. Dave has always been a bit too sure of himself when it comes to food. This will be a wake-up call.”

As we set the table, my nerves started to ease. This was going to be interesting.

When Dave arrived, his eyes lit up at the sight of the delicious spread. He eagerly dug in, but with each bite, his face started changing. He looked confused and a bit scared.

Scared man | Source: Pexels

Scared man | Source: Pexels

With a smirk on her face, his mom asked sweetly, “Is everything okay?”

He stammered, “Uh, yeah, it’s just… not what I expected.”

She smiled and said, “Hmmm, strange, I thought you missed my cooking?”

Mother-in-law tells Lily the story | Source: Midjourney

Mother-in-law tells Lily the story | Source: Midjourney

Dave went pale as the realization hit him. He turned to me, standing in the kitchen doorway, and I said, “I saw your message, Dave. If you have something to say about my cooking, say it to my face. I hope you enjoyed tonight’s meal as much as I enjoyed making it.”

Dave was speechless, and his mom chimed in, “I didn’t raise you to be disrespectful. You owe your wife an apology.”

Elderly lady with a laptop | Source: Pexels

Elderly lady with a laptop | Source: Pexels

He mumbled, “I’m sorry.”

But I wasn’t done. I pulled out my phone and said, “You know, Dave, I think I’ll send a picture of tonight’s meal to the boys’ chat, just like you did with my lasagna. Maybe they’ll appreciate a taste of your favorite dishes, ‘Mom’s style.’”

Senior woman and young woman sitting at dining table holding hands | Source: Getty Images

Senior woman and young woman sitting at dining table holding hands | Source: Getty Images

His eyes widened in horror as he realized what I was about to do. “No, please don’t!” he pleaded.

I gave him a stern look. “Maybe next time, you’ll think twice before mocking someone’s hard work.”

From that day on, Dave never complained about my cooking again, at least not behind my back. Whenever I cooked, he made sure to show his appreciation.

Senior woman in her 80s looks away, seeming confused and anxious | Source: Getty Images

Senior woman in her 80s looks away, seeming confused and anxious | Source: Getty Images

His mom looked at him sternly. “Dave, you need to understand how hurtful your words can be. Your wife put in a lot of effort to make that meal. She deserves your respect.”

Dave nodded, looking ashamed. “I know, Mom. I’m really sorry.”

“Actions speak louder than words,” she replied. “You need to show her that you appreciate what she does.”

Senior Caucasian woman with chin in hands | Source: Getty Images

Senior Caucasian woman with chin in hands | Source: Getty Images

Dave looked at me, his eyes full of regret. “I really am sorry, honey. I didn’t mean to hurt you.”

I crossed my arms and said, “Well, now you know how it feels to have your hard work disrespected.”

He nodded vigorously. “I promise, I’ll never do it again. I’ll be more appreciative from now on.”

Portrait of serious mature businessman wearing glasses in office | Source: Getty Images

Portrait of serious mature businessman wearing glasses in office | Source: Getty Images

His mom chimed in, “Good. Now, why don’t we all clean up together? It’ll give you a chance to show some of that appreciation.”

Dave quickly agreed, “Yes, Mom. Let’s clean up.”

As we worked together to clean the kitchen, Dave kept apologizing and thanking me for the meal. I could see he was genuinely sorry, and it felt good to know that he had learned his lesson.

Thankful Dave | Source: Midjourney

Thankful Dave | Source: Midjourney

Later that night, as we were getting ready for bed, Dave turned to me and said, “I really am sorry for what I did. I was being an idiot, and I hurt you. I never want to do that again.”

I sighed, feeling some of my anger melt away. “I appreciate the apology, Dave. But you need to remember that words can hurt. Next time, just be honest with me. We can work on things together.”

Woman hugging boyfriend | Source: Getty Images

Woman hugging boyfriend | Source: Getty Images

He nodded. “I will. Thank you for giving me another chance.”

“Just don’t mess it up,” I replied, giving him a small smile.

The next morning, Dave made breakfast as a gesture of goodwill. He served me a plate of pancakes with a shy smile. “I hope these are okay.”

Man makes pancakes | Source: Pexels

Man makes pancakes | Source: Pexels

I took a bite and smiled. “They’re perfect.”

Dave beamed, looking relieved. “I’m glad you like them.”

From that day on, Dave made a real effort to show his appreciation for my cooking. He never complained again, and our relationship grew stronger because of it.

Pancakes | Source: Pexels

Pancakes | Source: Pexels

The lesson here? Don’t bite the hand that feeds you, especially when that hand can serve up a dish of well-deserved revenge. Sometimes, a little creativity and teamwork with a great MIL are all you need to teach someone a valuable lesson.

I Returned Home from a 12-Hour Work Shift Just to Find Pizza Crusts Left for Me by My Husband as Dinner

My husband was so comfortable with not working that he wasn’t making an effort to find employment. One day he did something that broke the camel’s back and I finally lost it! I set about getting revenge on him in a way that forced him to change his ways completely.

A frustrated and drained woman holding folders | Source: Pexels

A frustrated and drained woman holding folders | Source: Pexels

Hi everyone, my name is Amanda and I am a 45-year-old married woman. I am not into handouts and have been working tirelessly. I’ve been juggling a full-time job and all the household chores. All the while my husband, Dave, 47, lounges around at home, doing the bare minimum.

Last week, he pushed me to my breaking point, and I decided it was time for some petty revenge! Grab some popcorn, because this one’s a good one! Before I get ahead of myself, let me start with a little background.

A woman cleaning her house | Source: Pexels

A woman cleaning her house | Source: Pexels

I am a nurse by profession and that means I work 12-hour shifts. My job, which I love and wouldn’t change for anything in the world, is physically and emotionally demanding. Meanwhile, Dave’s been unemployed for over a year.

Click here to read the rest of the story.

This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.

The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.

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