Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Poor Mom Lives in Old Trailer with Son and Never Lets Anyone in until She Gets Hospitalized
Before she passes out and is taken to the hospital, an impoverished woman never lets anyone inside her run-down trailer. Her life is ultimately altered irrevocably by the subsequent events.
“Hey, young one! Keep away from him! Barbara let out a scream and hurried to where her son Timothy was playing with a child called Harry. “You have no right to come play with my son here. He doesn’t associate with weirdos and recluses!
“Mum!” Timothy started to cry. “That’s not Harry at all! I invited him to play with me and the other kids from the neighborhood because we are friends.
“Stop talking, Tim! You’re not aware of the potential risk that some people pose. You are aware that his mother is a deranged person who never allows anyone to be around her or enter her ridiculous trailer? How often have I told you not to go visit him already?
“Please, mom! It’s a nice boy, Harry. Simply said, we Harry cut Timothy off just as he was getting started.
“Don’t worry, Tim. He turned to face Barbara and said, “My mom says that mothers are always right, but Mrs. Anderson.” “My mother is a sweetheart. She is so afraid that she won’t let anyone into our trailer.
“Afraid?” Barbara gave him a sardonic chuckle. “We ought to be terrified of her! She must be planning something shady! Anyway, remember this, child: you will never again play with my son! Did you get the message?
Harry became so overcome with emotion that he was unable to talk. He ran out of the park to where he always parked his old white trailer, beneath a parched tree that marked the edge of a woodland that connected two suburbs.
Tracy, his mother, became concerned when she noticed he was sobbing all the time. “Honey, what’s the issue? What’s causing your tears? Are you in pain?
Harry sobbed, “It was one of our neighbors again, mom.” “Mom, they call you names all the time. I detest that! I detest all of them!
Tracy gave him a hug and whispered, “Oh, honey.” “Never harbor hatred for someone. People tend to say hurtful things when they’re upset. It implies neither that they despise you nor…
“No, mother! You’re not getting it! Harry shot back. They have no interest in comprehending you, myself, or anybody else. Are you even aware of the events of today? Mrs. Anderson advised me not to play with Timothy because I’m a hermit’s son and called you a recluse. Mom, please let’s get out of this town. I wish to leave this place.
Tracy was at a loss for words at that time. She was unable to inform Harry that her supervisor had sacked her that very afternoon and that her savings were running low. There was a moment before she said, “Honey.” “Maybe we should put off making a decision until the following month?”
“But why, mother? Why should we put up with their taunts? The boy became irrational. “Aww…all right, just do what you want! He moaned, “I want to spend some time alone,” and turned to leave.
Tracy started crying as soon as Harry departed. She berated herself for being an awful mother and a failure in life who had let her son down in addition to herself. She got up slowly and went to her bed, where she sobbed while holding a picture of Harry. Before long, she was fast asleep and unable to think of anything.
Harry returned to the trailer after nearly an hour had passed. “On my way back, Mom, I picked up some bread.” Would you kindly prepare the french toast for tomorrow morning? As he walked in and shut the door, he said.
Tracy was sleeping on the bed when he discovered something strange about the way she was lying there. “Mum? After asking, “Did you have dinner?” and giving her a little shake, Tracy ended up on the ground. “Mum! What took place? Let your eyes open! As the youngster realized his mother was not breathing, he began to cry.
He swiftly looked for Tracy’s phone and made a 911 call. Tracy was hauled away by the ambulance after a short while, which seemed like an eternity to the little kid. Harry sobbed while sitting outside the trailer, covering his face with his hands.
A voice suddenly cut him off. “Boy, what are you doing here by yourself? What happened to your mother?
Harry observed an older woman standing in front of him when he looked up. She smiled and said, “Don’t worry, I often see you and your mother here before I leave for work, so I know you two.” “Is everything in order?”
Harry felt a tiny bit of relief. “Mom fainted and was taken to the hospital.” I’m concerned for her.
The woman let out a gasp. “Don’t worry, she will be alright. Did they let you know which hospital they brought her to?
Yes, they provided me with a number and address. They wouldn’t let me accompany her because I’m a minor.
What if you spent the evening at my house? Tomorrow morning, we can visit her.
“However,” Harry faltered. “Why do you assist me? Our neighbors don’t think well of us. Do you not also believe that we are?
The woman started giggling. Harry, try not to let stuff like this affect you. In some manner, everyone is cruel.
“How did you know my name, wow?” Never before have we…
“Well, when I get home late from work, I see that you’re playing around here a lot.” You refuse to go back and sleep despite your mother’s persistent pleas.
“Oh!” With a smirk, Harry embarrassedly rubbed the back of his head. “I apologize; I didn’t adequately introduce myself. Harry Stevens is who I am.
“Hello Harry, nice to meet you. You may address me as Mrs. Taylor. So, are you interested in coming to supper with me tonight?
The boy said, “Sure,” and went with Mrs. Taylor to her house. The boy stayed at her residence that night after they had dinner together. Tracy had fainted from stress and tiredness, they found out when they went to see her the next day. Mrs. Taylor took over to take after Harry while she was in the hospital, as the doctors predicted she would be there for some time.
“Ma’am, you have my sincere gratitude,” Tracy remarked to Mrs. Taylor. “I’m very happy Harry is doing well. She turned to Harry and said, “Honey, would you please wait outside while I speak with Mrs. Taylor?” “I have important things to talk about.”
Yes, mother.
Tracy burst into tears as Harry left. “We appreciate your assistance, ma’am. We are truly unable to repay your kindness.
“I’ve seen you by yourself quite a bit. How come you don’t interact with your neighbors? Although they can be bothersome occasionally, they aren’t too bad.
“Mrs. Taylor, I don’t blame them for treating me badly. I kept quiet about my living situation since I felt ashamed of it. Being an orphan, I was sure I could care for my son after my spouse passed away, but things didn’t work out. We had to get out of our big mansion and drive a little car. I used to be a waitress in a restaurant to help support my son while I was a struggling writer, but I got fired yesterday for being consistently late to work. I’m just a failure, nothing more. Kindly accept Harry. I am unable to care for him. Would you please…I simply want to stop living!” She sobbed uncontrollably.
“You ought not to say that! In all time! For now, concentrate on recovering quickly! Young lady, you never know where life will lead you!
Mrs. Taylor was correct, of course, when she emphasized that anything can happen in life at any time.
Sitting at a table, Tracy autographed copies of “The Woman: Life Through the Odds,” her debut book, which was already a New York Times bestseller. There was a sizable group waiting for her to sign the copies, and she was resplendent in a suit.
This day, exactly a year ago, she had come home from the hospital. Mrs. Taylor started a GoFundMe page to gather money to help her and Harry when she saw how horrible the conditions were inside her mobile home.
That gave Tracy the willpower to start over after she had earlier wanted to give up on everything and consider herself a failure. She began working as a waitress on the weekends and as a freelance writer during the week after renting a tiny home. She would write her book all night long, and nine months later, it was eventually published. Harry was able to attend a better school thanks to her, and Mrs. Taylor—who had previously been unknown to them—became both her mother and Harry’s grandmother.
As Tracy was about to leave her book signing, she thought back on how her life had altered. She pulled out to find a black automobile waiting for her. Anderson Brown, her fiancé, got out of the car and held the door open for her.
It was at Harry’s school that Tracy had first encountered him. She fell in love with him right away; he was a widower with a daughter. He asked her to marry him shortly after, and she accepted.
After Tracy took a seat in the front seat, they drove home to their daughter and son and their new roommate, Mrs. Taylor. On her walk home, she said a little prayer to God, giving thanks for everything.
What lessons may we draw from this tale?
We must exercise patience and seek out the bright side. When things get tough, we start to lose hope, just like Tracy. However, we must never lose sight of the truth that, with enough confidence, we can conquer any challenge. With Mrs. Taylor’s help, Tracy made a fresh start and is today a well-known author.
A book shouldn’t be judged by its cover. Because she was ashamed of her living situation, Tracey never opened her door to others, but they misinterpreted her and called her all kinds of nasty names.
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